Charlie and Daddy at the park last week, aren't the two of them so handsome? :)
I also wanted to share the link to these video's of Charlie back when he was 6 months old. I might have posted these already but I can't remember if it was on Facebook or the blog, so sorry if this is a re-post! They are videos about Infant Care in children with Cystic Fibrosis and Charlie was the "demonstration baby" (for lack of a better term?) for feeding babies enzymes and physiotherapy (or PT). Charlie was such a bald cutie with that big round face of his :) All the people in the video are Charlie's doctors, nurses, etc-- except the nutritionist has since left the position. These videos are up on the CFF.org website and are also given out as DVDs to newly diagnosed parents around the country, which I think would have been really helpful had it been available at the time. There is a LOT to learn when your kid is first diagnosed and you need to start medications etc immediately, so I think the video's are probably really helpful if someone is feeling overwhelmed and confused since they can refer back to them over and over. Anyways, check em out, Charlie is in the "Nutrition and Enzyme" video and the "CF Airway Clearance" video, but they're all interesting so I say watch them all!
Funny SN about PT: we have been using the Vest for over a year now but when Charlie coughs my husband and I always do a few hard physiotherapy thumps on his chest to help loosen anything up. A few nights ago as I was reading him a bedtime story he coughed so I started pounding on his back for a while and he says "What are you doing?" and I told him "Trying to help you cough" and he goes "No no, you're doing PT!". Haha! I was shocked he remembered the name for it since it's been so long and even when we did perform manual PT he never said anything about it. Just thought that was cute! He's starting to understand his CF more lately which has been nice. He asks for his enzymes before he starts eating and he's really pretty good about doing his treatments and holding his nebulizer up, even if getting him to sit down is sometimes a challenge ("No... no treatment mommy. No thanks. Not right now, I'm busy" lol). I found a few books on Amazon about CF for preschoolers and thought I would buy those and start reading them to him.
ANNNNNYways. I have quite a few scrappy type projects coming up in the near future and some layouts to share, but it will have to wait for another day! Happy Monday friends!